Over the past 72 hrs I have watched Jordan's eye's get worse. It is not only the left eye that is effected now :( It is both eye's. Today I called Dr. Fraser's office to just give them a run down of what was going on. As a Mom I felt like I might be overreacting but the medical side of me had big RED flags up!!! She had taken steroids over the past 24 hrs that were prescribed by Dr. Fraser & there had been NO change. This was the biggest red flag of all. So, his office called me back & off to the ER we went. She was scanned and luckily there was no big change!! YEAH some good news, we will take any at this point! Dr. Fraser came and spoke with us & per his guidance surgery will now be this Friday, May 25. Surgery will be done @ UK.
Everyone has had questions as to what the "exact" surgery/ how long recovery will be so I am going to try and explain it. The surgery is called a craniotomy(brain surgery). There will be an incision in the back of her head, they will cut thru the skull, spread the cerebellum apart, and remove the angioma from the pons.During the whole surgery she will be monitored by a special machine that will keep tabs on all of the 12 cranial nerves. The surgery will be anywhere from 4-12 hours. Jordan will then go to ICU for at least 2 days. She will more than likely have a tube down her throat and hooked to a machine for at least 24hrs after surgery.The tube will then be removed(pending that she can breath on her own with no problem) and the healing process will start. Now, what will the deficits be after surgery? That is the million dollar question. We will not know really how long recovery or rehab will be until she is awake. This is the scariest of all for Jordan & our family. We have faith in Dr. Fraser & in God. Please continue to pray for Jordan & our family!