Tuesday, May 22, 2012

Surgery date has changed!!!!

Over the past 72 hrs I have watched Jordan's eye's get worse.  It is not only the left eye that is effected now :(  It is both eye's.  Today I called Dr. Fraser's office to just give them a run down of what was going on.  As a Mom I felt like I might be overreacting but the medical side of me had big RED flags up!!!  She had taken steroids over the past 24 hrs that were prescribed by Dr. Fraser & there had been NO change.  This was the biggest red flag of all.  So, his office called me back & off to the ER we went.  She was scanned and luckily there was no big change!!  YEAH some good news, we will take any at this point!  Dr. Fraser came and spoke with us & per his guidance surgery will now be this Friday, May 25. Surgery will be done @ UK.
Everyone has had questions as to what the "exact" surgery/ how long recovery will be so I am going to try and explain it.  The surgery is called a craniotomy(brain surgery). There will be an incision  in the back of her head, they will cut thru the skull, spread the cerebellum apart, and remove the angioma from the pons.During the whole surgery she will be monitored by a special machine that will keep tabs on all of the 12 cranial nerves.  The surgery will be anywhere from 4-12 hours. Jordan will then go to ICU for at least 2 days.  She will more than likely have a tube down her throat and hooked to a machine for at least 24hrs after surgery.The tube will then be removed(pending that she can breath on her own with no problem) and the healing process will start. Now, what will the deficits be after surgery?  That is the million dollar question. We will not know really how long recovery or rehab will be until she is awake.  This is the scariest of all for Jordan & our family. We have faith in Dr. Fraser & in God.  Please continue to pray for Jordan & our family! 

10 comments:

  1. Krissy Freeman-GlassMay 22, 2012 at 7:01 PM

    Katie- So glad you started this blog to keep us informed.....praying for Jordan!!!!!!!! Love you all!

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  2. I cannot pretend to know what u guys are going through. I do know that as a parent the hardest thing in the world is to watch our children suffer. God will watch over Jordan because he has great plans for her right here with u and her bestfriend/sister. Love u guys and will be praying!!

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    1. Forgot to sign.....Lori Tolson : )

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    2. Dee just brought me up to date and I went to your blog to get the details. Jordon, Katie and family please know that we are lifting our voices in prayer to our Father for each of you. Also for the physicians whose skills need to be in top form. Although I don't know what else I can do, please let me know if there is any little thing that you need or that I could do for you. Continue to be strong and of great courage, you will need it to get through this difficult time. My faith is strong as I know yours is and it is all in HIS hands, and that is where I am placing each of you. Love to you all. Joe Ann

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  3. Jordan I love you sooooo much. I will b praying for u,katie, n taylor. I just wanted u to know that I love u guys n u will b in my thoughts n prayers.

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  4. Katie we will keep you all in our thoughts and prayers! I know as a parent it is so hard to watch your child suffer. I know she will be better soon and back to herself!!!! Dawn Farris

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  5. Katie we are keeping you all in our prayers!! Love you all bunches!!

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  6. Katie-

    Our family loves your girls and we will be keeping all of you, especially Jordan, close in prayer in the days and weeks to come. Give Jordan a big hug for me.

    Love,
    Kara Atwell

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  7. My daughter Callie went to school with your daughters and I have watched your daughters grow up from a distance from middle school birthday parties to receiving awards throughout high school. Jordan has grown into such an beautiful accomplished young women. Jordan and your family will certainly be in our prayers and thoughts! We serve a mighty God capable of mighty things!!

    C.C. Zaino

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  8. We're all thinking of Jordan here at the Honors House. Thanks for keeping us informed.
    With heartfely wishes for a successful surgery and strong recovery,
    Philip Krummrich

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