It is about 0940 and Jordan has been off the ventilator about one hour. She has been ready to get that tube out of her throat since about 0400!!! Her first words were "one thing or another" because she immediately was put on a oxygen cannula. She will stay in the ICU for another 24 hours before she is moved to a regular room. Her spirits are good and she is cracking the nurse up this am with her humor! On the down side her right side is weaker than the left,still issues with her vision/eyes, she has some swelling this morning, & nausea/vomiting. Thankfully, she doesn't seem to be complaining of much pain. This morning Dr. Fraser said she has a rough 12-16 weeks ahead of her but she is young, healthy, positive attitude, and a wonderful support system.
I can't thank everyone enough for all the phone calls, text messages, emails, thoughts, and the most important thing of all the PRAYERS!!! God has truly answered some for her & our family!!
I am so happy to read that she is doing good after surgery (especially after having had TWO removed CAs!). Once her swelling has gone down and she starts physical therapy, I know she'll be in even better shape -especially being so young. Of course she doesn't know me, but please tell her that another stemmie (brainstem) cavernous angioma patient thinking of and pulling for her!ReplyDelete
I read your post to Jordan and she loved the "stemmie"!! She said thanks for the encouraging words!! She actually has taken a couple of steps today and is sitting in a chair:)Delete
Awww, yes, we have to have our own name for our category :) And what great news - especially not being a full day out of surgery. She sounds like a winning combo with her positivity and the support system you guys provide. I look forward to many more updates.ReplyDelete
I'm not sure if either of you are on Facebook, but there's a lovely group on there called 'Stemmies' and it's a wonderful mix of brainstem angioma patients of all ages who have had surgery, are thinking about it, or have been advised against it. Let me know if you'd like the link. Take care and thinking of you guys.