After a very long day on Friday that included a 2 hour flight delay, we made it home safely about 1:30 Saturday am. After waking up, Jordan got to take her first shower since surgery, and it made her feel so much better!! The face swelling was pretty bad on Friday and Saturday, but today it is looking much better and her leg discomfort is much better! Today she says she has some numbness on the right side of her face and above her lip so I am going to email tomorrow to make sure that is normal. Overall, we are very pleased with the procedure. Now she just waits for the nerve to regenerate itself which happens about a mm a day. The goal is in about 3-4 months she will feel some tingling. Below are some pictures of her facial incisions & fun in Boston.
Christmas is almost here!! As most of you know, Christmas is also the girls birthday and this year they will be 21!! So Christmas is always a very special time for us.
Right side of face Left side of face
Jordan & Taylor & Jordan with the Christmas Tree in Faneuil Hall.
We want to wish all of you a very Merry Christmas and a wonderful New Year!!
PRAY FOR JORDAN!!
In July of 2005 our nice normal world as we knew it changed forever when Jordan was diagnosed with a Cavernous Angioma in her pons. She was 12 @ the time, and we didn't realize how much this was going to change our lives as we knew it.
Sunday, December 22, 2013
Thursday, December 19, 2013
Boston...1st day post op
After a rough night of nausea, vomiting, and changing ice packs every hour she is doing well. We busted out of the hospital this afternoon, got to the hotel and took a good long nap! Her biggest complaint continues to be the swelling and the left leg discomfort. As all of you know that is her good leg so walking is a little rough. She is on some antibiotics for the next 7 days and she has some good pain meds for the ride home. Jordan's positive attitude and perserverance continues to amaze me!
I want to also give a shout out to the wonderful staff of Mass Eye and Ear. They were wonderful!!!
PRAY FOR JORDAN!!!
I want to also give a shout out to the wonderful staff of Mass Eye and Ear. They were wonderful!!!
PRAY FOR JORDAN!!!
Wednesday, December 18, 2013
Boston surgery..
Today Jordan had the 1st of 2 surgeries on her face to help her facial palsy. During the surgery a nerve from her left leg was connected to a nerve from the RIGHT side of her face and then threaded into the left side of her face. 3 hours and 5 incisions later she is doing great! The largest incision is on the right side of her face, one on the left side of her face, one on the inside of the upper lip, and 2 on the lower part of her left leg.
The only real complaint she has is the face dressing and her lip swelling! Unfortunately, the dressing has to be worn for the next 3-4 days and the swelling will get worse before it gets better:(
On another note if you ever travel to Boston ALWAYS ask the cab driver if he knows where he is going!!! This morning the cab we took wanted us to tell him how to get to where we were going!! For those of you who know me personally, well ya know how that went!
I want to thank all of you for your thoughts and prayers!
PRAY FOR JORDAN.
The only real complaint she has is the face dressing and her lip swelling! Unfortunately, the dressing has to be worn for the next 3-4 days and the swelling will get worse before it gets better:(
On another note if you ever travel to Boston ALWAYS ask the cab driver if he knows where he is going!!! This morning the cab we took wanted us to tell him how to get to where we were going!! For those of you who know me personally, well ya know how that went!
I want to thank all of you for your thoughts and prayers!
PRAY FOR JORDAN.
Tuesday, December 17, 2013
Back on the road, 4.0 for the semester, & in Boston!!
Look out everyone because Jordan is back to driving!! Yesterday her car was fitted with the attachment to put the gas pedal on the left side of the brake to make driving easier for her. I can't even begin to explain how happy she is to have her independence back! While I am excited for her, I hope my nerves survive!! Let's just say it is worse than when she was 16!!
Today also brought the news of Fall semester grades...4.0! All I can say is how proud I am of her and all of her accomplishments!! She is AMAZING!
We arrived in Boston this morning to see the eye MD and to prepare for surgery tomorrow. The eye MD was very informativeand very overwhelming!! Basically Jordan has 2 options she can choose from another surgery or nothing. He explained in great detail the pros and cons of each option. Jordan said she was going to discuss all of this with Dr. Bradley before she makes a final decision.
Once that decision gets made I will pass that onto all of you!!
On another note, it is VERY cold & snowy here!!! This Mom is not made for cold weather!!
I want to thank everyone that continues to help & pray for Jordan & our family during this journey.
PRAY FOR JORDAN!
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