Thursday, September 26, 2013

It's the little things....

Most of us take for granted the little things in life.  The below is a conversation that Jordan & I had on text messages today.  Jordan: You would be so proud of me today ME: Why?  Call me!!  Jordan: I put eye drops in this morning.  Myself :)   Jordan: YEAH!!  I am so PROUD of you!!
Of course this made me cry happy tears!  It has taken her 16 Months to be able to do this by herself & this little step was a HUGE one.  So the lesson here for all of us is to NOT take the little things for granted!!
Please continue to say prayers for Jordan..we are still waiting to hear from the insurance company about Boston!

Monday, September 16, 2013

Lots of updates....

Well Jordan had her drivers evaluation a couple of weeks ago and it went great!!!  They used this neat thing that places the gas pedal on the left side of the brake! She did great with it! Looks like  she will only need to that one vehicle modification for her to be able to drive! So now we will wait to hear from Voc Rehab to make sure the training/modification will be approved!
Today we are seeing Dr. Bradley! Unfortunately, Jordan's eyes still aren't giving her the results that we were hoping for. Looks like Jordan would need 3 pair of glasses, one for near,one for distance, and one for driving. In KY you can NOT drive with prisms in your glasses:( This is NOT the best scenario!!  Botox was discussed but before we do that we will see another MD to get her opinion. I think we need a secretary to keep up with all the MD's we see!! Any volunteers?!?
So today she will get a script for glasses(near) with a detachable prism.  This is very disappointing for Jordan and for me as a Mom I just want to sit down and cry! Seems like for every step Jordan takes she gets pushed back 20! My girl needs a break! 
On another note we have asked for approval for the 2 step surgery by Dr. Hadlock! Keep all your fingers and toes crossed that this will happen!