Thursday, May 25, 2017

Has it really been 5 years?

WOW...hard to believe that Jordan's Journey began on this day five years ago!  As I look back and reflect on that day I don't think any of us, especially Jordan was prepared for what was to come. That day was the start of a new way of life not only for Jordan but for our family. I can still hear her say "I love you", before being whisked away to the OR room and the emotions of what it was like to see her hours later intubated and to hear her voice for the first time 24+ hours later is still as fresh as it was that day. There were so many unknowns and so many obstacles to overcome, yet Jordan proved every step of the way just how strong she was and how resilient she was to overcome those obstacles! Yes, there were lots of hard times but every obstacle that she overcame made those hard times not seem so damn hard!
Fast forward 5 years and she is as independent as she was before surgery 5 years ago!   She is working doing what she loves, MRI/Xray's at two local hospitals, still has that big smile, and still has that contagious positive spirit about her! One thing is for sure, she does NOT let her deficits hold her back from living! Her and Cory are doing wonderful and just purchased their 1st home!  I am also so very very thankful for Cory and all he has done and continues to do for her on a daily basis!  I am thankful that he figured out how to renew this blog so I could update everyone!! Google sure doesn't make it easy for a technology challenged person!
We have a follow up MRI and appointment in July, so I will be sure to update again then.  Until then,  thank you for the prayers and continued prayers for Jordan and our family!  


5/25/17...5years later!

Tuesday, November 1, 2016

Where has summer gone?

Hello everyone! Again, I can't believe it has been 5 months since I have updated the blog!  The old saying, no news is good news is so correct!!  The summer has been relatively uneventful for Jordan and us.  The summer was spent working and all of us enjoying the lake!  The girls love Haunted Houses and for Halloween we went to Escape Waveland! We were able to breakout and had a great time!  Jordan is doing great and is doing what she loves...MRI & XRAY!   To say that I am proud of her is an understatement!  She continues to inspire me everyday! Taylor is in grad school and is getting ready to start an internship in Music Therapy in Jackson, TN.  Trevor is a Freshmen @ UK and is loving the college life!
We are all looking forward to Thanksgiving, Christmas, and the girls 24th Birthday!!

Again thanks to all of you that continue to pray and be a cheerleader for Jordan! There are many of you that we have never meet in person but we have become friends via this blog. We are thankful for those friendships and for each one of you!   PRAY FOR JORDAN!

Wednesday, May 25, 2016

4 years today.........

Has it really been December since I updated the blog?!?!  WOW    No news is good news!! I am happy to say that  Jordan is doing great!! It is 7am as I write this and it was 4 years ago that they had just wheeled her back to the OR and her real journey began.  As I reflect on that day, there are lots of emotions.  That was the longest day of my life that was filled with too much unknown!  The waiting room was filled with tons of people there to support Jordan and our family.   Jordan has had a long windy journey since this day 4 yrs ago. Multiple surgeries, therapy, more therapy, even more therapy,  and adjusting everyday routines to compensate for her motor skill deficits.  Her outcome has been so good because she had  great doctors and therapist! 
  On May 14th she graduated from MSU with honors in radiology sciences.  I must tell the sweetest story of the beautiful yellow dress she wore.  Cory picked that dress out himself at Ralph Lauren (with a little face time help from Taylor).  He wanted to surprise her with a new dress for graduation.  Well he could only hold the surprise for about 4 hours! LOL  She loved the dress and picked out some small wedge sandals to wear with it.  YES…..she actually could walk in them!!! Made me nervous as hell but another obstacle she has overcame!!!  She has taken and passed her  RT (xray) CT(cat scan)boards and will soon sit for her MRI boards.   She is also now working part time for a local hospital. There are just no words to describe the feeling that I had as a Mom watching her walk across the stage.  Just knowing what all she has gone thru and overcame brought lots of happy tears to not only me but to all that could attend.   There isn’t a day that goes by that I am not still truly amazed by her.  Her future is bright!!!
Now I am sure some of you are asking when is the wedding date?!?!  Still no date yet!  They are in no hurry and that is fine with meJ   Cory has been a part of this family for so long and with school being done I am sure a date will come soon J

Again thank you to each and every one of you that continue to pray and be a cheerleader for Jordan. All of you have been down this journey with her and us in some form or fashion.  We are very grateful for each and every one of you.  PRAY FOR JORDAN

Thursday, December 31, 2015

2015 Reflections

What a great year 2015 was for Jordan!!  Of course she has rocked it out in school by graduating in May with her AD in radiology sciences,went on to take the boards and passed with a PERFECT score!!!  She went straight into the CT/MRI program and just passed her CT boards and will start MRI in January.  We are all so proud of her for achieving her goals!  Jordan pours herself into her studies and the results are nothing short of AMAZING!!! 
Everyone is always asking about a wedding date!  A wedding date has still not been set.  Jordan wants to wait until she is completely done with school before starting to focus on planning a wedding!  I know when the wedding planning starts it will be very crazy and I suspect Taylor will act as the wedding planner! 
Health wise 2015 has been a GREAT year for Jordan!!!!  This year has been surgery FREE (except for wisdom teeth coming out)!!!!!!   The year we have just had regularly scheduled check ups and only one scare which turned out to be nothing.  On one hand it was very very odd not to have a surgery, since a surgery a year had become the norm since 2012!  As a Mom I am very thankful and I continue to pray that 2016 will be just as good to her! 
Of course Christmas was also Jordan & Taylor's 23rd  Birthday!! As all of you can expect Christmas at our house is very crazy!  We had a good Birthday celebration in the morning and then we celebrated Christmas that afternoon!  Having Christmas babies makes for a very fun day!!

We hope that you and yours had a wonderful Christmas and wish you nothing but the best in 2016! #prayforjordan

Wednesday, July 8, 2015

One year later....

This week makes one year since we traveled to Boston for the 2nd phase of the facial surgery.  I wished I could tell you that she has movement but to be honest she doesn't.  We were so excited for this surgery and we were very hopeful for a great outcome.  While there isn't much movement, people that don't get to see her very often see a difference in her face. I wished that we could see it as much as they tell me they see it.  Jordan doesn't really see it and to be honest she really doesn't talk about it much.  I know deep down she was hoping for a better outcome & is disappointed.  She has overcame so much & has accomplished many things these past 3 years!  So YES we are going to continue our daily lives and Jordan will continue to achieve great things!  PRAY FOR JORDAN!
June 2015

Spring 2015

July 2014

Monday, May 25, 2015

Three years today....

Today is a day full of lots of emotions for me as a Mom.  It is hard to believe that is has been 3yrs since Jordan's surgery, which ultimately became the 1st day of her "new" normal. Looking back if you would have told me then that she would be where she is today, I would have thought you were crazy.  The best word that I can use to describe her during that 1st year was fragile,  She was fragile mentally, physically, and emotionally.  We were just talking the other day and I asked her what she had expected after surgery. Her response was "she thought she would be better right then". That response was pretty emotional for me.  This journey has been hard for her but yet she proved and continues to prove that she is one tough, strong person.
Now here we are 3yrs later and she has finished her associates degree with honors and is going on to get her Bachelor's. She wasn't going to let a brain bleed & her physical limitations stop her from dreaming and seeing those dreams become a reality! There are just not enough words to describe how inspirational she is to me on a daily basis.
So today we will celebrate life and Jordan!  PRAY FOR JORDAN!!

Wednesday, April 29, 2015

Graduating from College!!!!!!!!!!!!!!!!!!

I can't believe it has been so long since I have posted!!  I guess the old saying of no news is good news is true for us!!!   Here is a quick update on Jordan :):) 
It was about this time 3yrs ago when Jordan called me to say her eye was going crazy again and we knew she more than likely she had a bleed but little did we know that this event would start a journey that is & will always be ongoing for her. The journey for her has been long, hard, & at times she was ready to throw in the towel.  After only taking ONE semester off of school I am proud to say that Jordan will be recognized for her academic achievement’s tomorrow @ MSU.  She will graduate with honors from MSU next week & is going on to obtain her Bachelor’s.  Brain surgery sure didn’t keep her from keeping a 4.0 thru college!  #jordansjourney #oneproudmom

Monday, January 26, 2015

Happy New Year!!!

First let me say I am sorry I am behind on doing an update!   Hope everyone had a wonderful Thanksgiving, Christmas & New Year! The girls and I were unlucky enough to have the flu over Christmas:(  So Christmas & birthday's was spent on the couch!
Believe it or not there isn't a lot to update on!  Jordan is doing great:) She hasn't had any MD appts, expect for a regular eye appt in some time!  Must say it is kind of nice to not have to go to a MD every week!   We are entering the period where we could start seeing some facial movement!  This is very exciting yet very scary all at the same time!  I am hopeful that she will have movement and all she has been through the past year or so has all been worth it!
 As I have come to expect she got another 4.0 last semester and is back on campus this semester.  As part of her Honor's scholarship @ MSU she has to do a international study.  Due to her medical condition they have agreed to let her do a Cruise!  So this spring break her & Cory will be traveling to fulfill that requirement and to enjoy the sun/sand!  I must say I am kind of jealous!  LOL
Please continue to keep her in your thoughts & prayers!!  PRAY FOR JORDAN!!

Friday, November 28, 2014

Happy Belated Thanksgiving from our house to yours....

Just a quick little note to tell everyone Happy Thanksgiving!!  We have lots to be Thankful for, not only on this holiday but on a daily basis!  God has given us a great roof over our head, good jobs, and good health this year! 
Jordan is doing great and is looking forward to her Christmas break in 2weeks.  She LOVES the radiology program:) She and Taylor are my DAILY inspirations!  

Below is a picture of Jordan over the past year or so.  People that don't see her everyday tell me they can see a huge difference! What do you think?  Sometimes I think I can and sometimes I think I don't but in reality I am just hopeful that she will see movement in the spring.  
Hope you all enjoyed a wonderful Thanksgiving with friends & family!!

Monday, September 8, 2014

Just a little this & that...

Whew what a whirlwind of a weekend!  This weekend we celebrated Sara & Michael's beautiful wedding!!  Sara is one of the girl's best friends since Kindergarten & they all graduated from Bryan Station together.  Hard to believe that they are old enough to be getting married!  I am trying to pitch a destination wedding to Jordan but she told me to drop it because it was NOT going to happen! LOL
I do know that Taylor will be the official wedding planner!!!!

Jordan is doing great & I wanted to share a couple of pictures from the wedding! 

Jordan & Taylor

Taylor, Sara, & Jordan

Jordan & Cory

Tuesday, August 19, 2014

Good eye appt & back to school she goes...

Jordan recently saw Dr. Bradley for a follow up! Her eyes are doing great and no change was needed in her prescription! A long overdue Fresnel Prism for her lens was replaced & a discussion was made about possibly getting a contact lens to go over her left eye in times that she did not want to wear glasses.  She decided to wait until a school break to get an appointment with the contact person to discuss this further & I think it would be nice for her to have that option!  Dr. Bradley was pleased with how the weight looked and how well her eye had healed!  Jordan doesn't need to see her again until the Spring, which is GREAT news!!
She has also completely healed up from this last surgery!  All of her incisions look great but the leg still gives her a little trouble:(  Hopefully, in time that will get go away.
Back to school already?!?!  Yes, Jordan started back to school yesterday & is doing a clinical rotation in Georgetown.  She seems to be loving it  & can't wait to get this semester under her belt! This means that she will only be on campus in Morehead on certain Friday's, so we will get to see more of her this semester!  
On another note... Below I wanted to share some pics from Boston, recent one of the girls, & another of the engagement!

 There is nothing like the love of sisters.These pictures reflect their love & shows where a big part of our life has been spent the past 2 years & the improvement that has been made! I can't even begin to explain how thankful that I am that Jordan is able to be back in school & make plans for her future.  We have LOTS of different doctors, nurses, & therapist's to thank for that! Jordan has shown her strength & resilience many times & continues to inspire not just me but many other's with her journey! I am very proud of both my girls & am so lucky that God chose me to be their Mom!

Monday, July 28, 2014

Great News!!!!

Well Jordan had her follow up appointment on Friday with Dr. Fraser and we got GREAT NEWS!!  Jordan does NOT have to go back for a MRI or an appt with him for 2yrs!!  WHOO HOOO  This was exciting & great news for us!! We are still so thankful for Dr. Fraser, Lindsey, & rest of the NS team. We will miss not seeing them but we also hope we do not have to see them in the next 2 yrs.
On another note, Jordan has recovered great from her last surgery. The incisions look great & have healed great!  She is getting excited about starting back to school in August & starting clinicals! 
Thanks to all of you for the continued until next time.  PRAY FOR JORDAN!!!

Tuesday, July 15, 2014

Back home & some EXCITING news!!!

We got home Saturday evening and we were all very glad to be home! Jordan did well traveling, which was a big relief for Taylor & I. Let's just say we were all excited to see the family/dogs & sleep in our own beds Saturday night!!  Sunday I rested while Jordan, Cory & Taylor went to tell the rest of the family her big news!! On July 3rd Jordan got engaged to Cory, her boyfriend of 3 1/2 years! He did a excellent job surprising her & having a photographer there to capture the big moment!  He is a wonderful young man that I know will always stand by her side! It was a very special moment for us all & we look forward to planning a wedding in a couple of years!!

Now let's get to how she is feeling. She is actually doing really well! The swelling seems to be getting better everyday & the eye is looking better! The biggest complaint that she has is her leg :( it seems to have muscle spasms constantly & as she would say,"a real pain"!  As most of you know Jordan pushes right thru it & is such a trooper! She is looking forward to getting the face sutures out on Friday and for the steri strips to fall off of her leg!
Tomorrow she has her annual follow up brain MRI & will see Dr. Fraser next week. To be honest I am always nervous before the MRI until we get the results & this time it will be a little harder because we will have to wait a week for results! Oh well, I know that God has this!
On another note I would like to ask all the prayer warriors out there to pray for my friend's daughter Hannah. Hannah was traveling to China when the plane had to be diverted to Canada due to an issue with her shunt. She had surgery today to replace the shunt and needs prayers for a speedy recovery so they can bring her home! 

Saturday, July 12, 2014

Busted out yesterday and headed home today!!

After getting the all clear from the eye MD yesterday am Jordan was cleared to finally be released!! The conclusion on the eye was that the epinephrine that was used with the lidocaine to numb the eye before the procedure was the cause of the pupil issue. Let me tell you what a relief that there wasn't a new eye issue to deal with. So we hung out in the hospital until early afternoon before heading to the hotel.  I can not begin to express how wonderful the nursing staff was at Mass Eye & Ear! Pearl, Ruth, Shannon, Caitlin all took great care of Jordan & Taylor & I. The night nursing staff always had the excitement because of her crazy low blood pressure! It would drive them crazy! They were all excited to see us go! LOL 
Our family from Rhode Island, Andrew & Yavonka, came up last night and we went out to dinner.  On our crazy drive thru Boston we passed by China Town and let me just say that was pretty amazing! As Yavonka said, it looked just like  a movie set! We enjoyed getting to see them again before we left town. Last night we all got some much needed uninterrupted sleep, which was much needed! Our flight leaves @ 1pm today and we are all anxious to get home!! I am ready to see the family & the dogs!! 
Now everyone has had lots of questions about the surgery so let me try to answer the most common oquestions  & clarify some other questions.Yes she has swelling in the face that will take about 4 weeks to totally subside. Her eyelid swelling should subside in about a week. She does have 6 incisions. One long incision on the face, one in the left crease of the nose, 2 small incisions on the outer right thigh,one long incision on the inner right thigh, & one on the eyelid. Mobility seems to be ok but she does move slower. The leg is pretty sore. The left eye does close now and should still close once the swelling subsides!  This is very exciting!!! Now for the biggest question when will she see result on the face. If this surgery is successful, & we are very POSITIVE that it will be, movement occurs in 8-12 months.  We know back to the waiting game, which to be honest sucks but the results will be worth waiting for! So for know we focus on healing, getting her mobility back to her normal, and going on with life. Jordan is ready to be done with surgeries! 
I will updated the blog later tomorrow after we get home and get settled in! Thanks for all the thoughts & prayers!! 

Thursday, July 10, 2014

So much for discharge...:(

Today, we'll I guess yesterday since I am writing this at 1:30am, was a pretty non eventful day until the afternoon. Around 2pm we went downstairs to Dr. Hadlock's office so she could place the eyelid weight and pull her bottom eyelid up before being discharged. This was a minor 30-40 min procedure.
When Dr.Hadlock came to talk to us she said she wanted to keep her an additional night for a couple of reasons. 1. The last drain, that was on inside of her leg, had yet to be pulled due to amount it kept putting out.  2. The eye procedure didn't go as smooth as she liked. We were all a little bumped about this plan but we rolled with it. 
So the new plan consisted of going ahead and pulling the drain to make sure that no fluid collection was going to build up before we headed home and to carefully watch the eye. We got back to the room about 3 and let's just say Jordan had all kinds of attention! They were checking on her about every 40 min or so and by about 5ish we had our first bump in the road! They were very concerned with the outside corner of the eye and was worried about bleeding. Jordan was also saying that the outside corner had some discomfort. The fact that she was saying the word "discomfort" was a huge RED flag!  This prompted a urgent ophthalmology consultation! While they were waiting for the eye MD to come they cut the outside sutures and she had almost instant relief. The eye MD came and it was decided that she would go downstairs to the eye ER for a complete work up. So off we went, wheeled down by Dr. Caroline Banks, Dr. Hadlock's fellow, who stayed with us the whole time during the ER visit! I can't begin to tell you how much that meant to us!! The work up was concerning for a pupillary issue. We aren't sure exactly what but something about the pupils don't react together and are not the same size.  At this point it was like too much at once and glad it wasn't bleeding behind the eye!  We got back to the room and Jordan's eye is  being checked hourly and we will trek downstairs to see the eye MD at 9am. 
Later today we hope to be discharged to the hotel & hope to be on a plane for home come Saturday!!
Unfortunately, we are used to the bumps in the road but we are flexible and Jordan just rolls with it. Her strength & resilience NEVER ceases to amaze me! 

Getting discharged today!!!

Yesterday was a pretty crazy day around here! Yesterday the facial swelling was worse, which is common but they did get to pull her face drain and she was able to take a shower!! The shower made her feel much better but that fever stayed persistent throughout the day until about 12:30 this morning when it broke!! That is also when her BP was freaking the nurses out! They are just not used to seeing a 86/41 pressure! I had to keep reminding them that this was totally normal for her and they would keep repeating it. Let's just say Jordan was very frustrated with them! 
I was ecstatic that the fever finally broke and to top it all of they had given her a pretty high dose of steroids around 11pm so she had Taylor up playing Fluxx at 1am this morning! She had Taylor & I laughing so hard last night with the funny things she kept saying! 
This morning they pulled the outside leg drain but the inside drain may need to stay in another day! They will make that final decision this afternoon. This morning the swelling is about the same and she has a nice shiner on that left eye! This is all normal! Jordan may also get the eyelid weight done today!! As most of you may know, Jordan's left eye hasn't closed since the craniotomy surgery(5/25/12). So this will make a huge difference for her & will also help protect that eye. This will depend on the facial swelling and Dr. Hadlock will make that decision this afternoon. Fingers & toes crossed for this!! Jordan & I can't wait to get more than 3 hrs of uninterrupted sleep!! Let's just sayTaylor has not missed a beat with her sleep! So I am off to pack up a hospital room so we can go to a hotel room!

Tuesday, July 8, 2014

Typical crazy post op day...

Last night Jordan rested better than usual after a surgery. One of the anesthia MD's had a brilliant idea & placed a scopolamine patch on her during surgery and left it on to see if that would help with the usual nausea & vomiting she normally has post op. Guess did one hell of a job because for the first time she had NO n/v these past 24 hrs!!  YEAH!!!!
This morning we went down early for an ultrasound to make sure the muscle flap was getting great blood flow and it was perfect!! They keep telling us how amazed it has all went so far and we are ecstatic!  We were hoping for a non eventful day but that was not to be. Jordan has spiked a low grade fever that keeps going up and down. All her labs look good except for magnesium & potassium. So tonight she has been getting IV mag, had to drink some nasty tasting potassium with Apple juice, plus getting her normal dose of IV antibiotic. So I am sitting her waiting for all the IV's to stop and the drains to be emptied before trying to get some sleep & reflecting on the other BIG positive thing. Jordan has been walking today with little assistance!!!!! I was worried about ambulation but I think it time she will be back to her normal! 
 As I am typing this she is asleep in the bed and Tay is asleep in the chair beside her with her head laid on a pillow beside her sister. It is the sweetest thing. Their bond is amazing and having Tay with her this trip has been wonderful for me & Jordan.
I am hoping tomorrow brings good lab results, NO fevers, & a little less pain for her. #prayforjordan

Monday, July 7, 2014

Surgery day!!!

We arrived promptly at 6am for check in this morning, and I was very thankful for a cab driver that didn't need directions!! Jordan went back about 7:30 and I spoke with Dr. Hadlock around 12:30.  She is VERY pleased with how everything went! She fixed the deviated septum on the left side, which opened up her nasal airway. So she has an incision in the crease of the nose and 2 small incisions on the outside of the right leg, where fascia was taken to open the airway up. Jordan said she hadn't realized what she had been missing & it was nice to have more air!
 The muscle transfer to the face went great and Dr. Hadlock  is very pleased with how "perfect" it went! This created an incision on the left side of the face which is about 7-8" long and an incision on the inside of the right leg. Not sure how long the leg incisions are, because it is all banadaged up! She also has drains in the leg and face that will stay until at least Wednesday.
Of courses he had a million questions for the nurse post op and we were also able to see the nurse Linda that took care of her after the surgery in Dec. They are all amazed and what a great patient she is! Overall she is doing great & looks amazing!! The initial post surgical ultrasound of the face sounded great & the next 24 hrs we are praying for no hematomas or clots in the vein!! 
Thanks for keeping us in your thoughts & prayers!!

Sunday, July 6, 2014

We are in Boston!

Our first day in Boston we took Taylor downtown to Faneuli Hall. We ate @ Cheers with family, took a carriage ride, and went on the awesome Ghost & Gravestone trolley tour. We had a crazy long first day and are getting a very late start today!
Tomorrow Jordan checks in at 6 am for the big day. So, we are going to enjoy our afternoon here in the city, eat lots, and enjoy our time together. 
Thanks for all the thoughts & prayers!!!

Tuesday, June 24, 2014

Preparing for Boston.....

The preop physical is done, consent has been signed, and everything has been emailed to Boston!  Yep, it is time for another surgery on 7/7/14! For me it is hard to believe that 2 weeks from now Jordan will be once again on the road to recovery from another surgery! There have been lots of questions regarding this surgery so I am going to try and explain it! 
As most of you that follow us know that in December 2013 Jordan had a nerve graft done.  This entailed moving nerve from her left leg to the left side of her face. So the nerve has been regenerating since then. If you are asking yourself if this is possible, it is and it has regenerated!!  This surgery will be to move a piece of her left thigh to the left cheek. Then they will connect the nerve & blood supply. This is another long surgery and she will be admitted from Mon-Thurs. Now I am sure you are thinking will the results be immediate, unfortunately, no.   Hopefully in 2 months we will see some movement and it can be up to 2 years for the best improvement.  Jordan will have lots of facial exercises to do and may even need some facial therapy.   As a Mom my biggest concern will be the leg incision since it will be on her good leg. We all know how resilient Jordan is so I am sure she is going to do GREAT!
Jordan has a summer class this month & will finish that up this week. She will get a week off before we head to Boston. We are excited about doing a Ghost tour one night and can't wait to see family, Andrew & Yavonka!! This trip will be just Jordan, Taylor, & I.  WHEW I don't know if Boston is ready for us!