Monday, April 7, 2014

Great News & upcoming Golf Scramble.....

So sorry it has been so long since I have updated all of you!  Jordan continues to show signs of feeling in the face and the feeling seems to get stronger everyday!!   This is GREAT & exactly what is supposed to happen!!  Jordan's next surgery will be July 7th  in Boston & Taylor will be going with us! We are all just very nervous but know it will all be fine!  Next week is the disability hearing with the Judge. This has been a long process & we are hoping for a positive outcome!  So please say a prayer that the Judge will rule in her favor!!

On another note the girls Uncle Chris & Uncle Tony once again have put a golf scramble together to help with the ongoing medical/travel expenses.  The scramble is May 10th @ Cassell  Creek Golf Course, 4199 Lexington Rd, Winchester, KY.  Registration is @ 8:00 & tee off is @ 8:30.  The cost is $45 a person & the cost includes lunch.  If interested in golfing please contact Chris Chapman @ 859-396-9237. I hope to see some of you there!!!

Thanks again for all the prayers & support for Jordan!!!  PRAY FOR JORDAN!!!

Tuesday, February 25, 2014

THERE IS FEELING!!!!!!!!!!!!!!!!!!!!

This morning I received the below text from Jordan :)::)

I immediately called her and we were both on the phone crying with excitement!  This is such a HUGE development & a great sign that the nerve is regenerating!!!  We just wanted to share this great news
with all of you!!  Keep them prayers coming because they are WORKING!!  PRAY FOR JORDAN!!

Sunday, February 9, 2014

What's with all this white stuff?!?!?!

How many of you out there think this WHITE stuff is never going to go away?!?!  For all of you that know me, know that I am NOT a fan of the cold weather!!  I am SO ready for warmer weather and SPRING!!! Enough about the weather, let me tell you guys how Jordan is doing!!

Really there isn't much to tell. Health wise she is doing well right now.  No feeling yet from the nerve but we are hopeful that will occur in the next 2 months! She is doing great in school, loving clinicals, and like me is OVER this weather.  As all of you know she started driving again and the weather has NOT cooperated with making that stress free!  She has done well driving in it but it sure makes this Mom worry even more!  

Hope everyone that follows the blog is doing well and thank you again for all the support/prayers for Jordan!! Until next time....PRAY FOR JORDAN!!!

Tuesday, January 7, 2014

Happy New Year!!!

Another Christmas and New Year has come and gone.  Our family had a wonderful time with family & friends over the holidays and the girls celebrated their big 21st birthday!!!  WOW where did that time go? We hope all of you also got to spend time with loved ones!!

Jordan is doing great and the incisions look awesome!Big shout out to Mandy & Christie for taking her sutures out!!!  The only complaint that she is having is constant pain in her left heel/foot and we are hopeful that once the nerves start to heal in that area this will go away. Now comes the hard part...waiting for that nerve to grow and do its thing!  Hopefully in about 3-6 months she will have some feeling on the right side!!  
She is now focusing on getting ready for school to start back and is already studying!!  When she returns she will be doing a clinical rotation in Morehead and she is VERY excited about this!  Again, she continues to amaze me everyday by overcoming adversity and ALWAYS with a smile on her face!!  Of course after this semester she will have another surgery.  The 2nd step is scheduled for July 7th! At least there will be no white stuff that time of year!!  
Thanks again to all of you that pray for Jordan, pray for our family, follow the blog, and have financially helped us along this journey.  We could not have done this without all of you!  PRAY FOR JORDAN!!! 

Sunday, December 22, 2013

Starting to feel better & Merry Christmas from all of us...

After a very long day on Friday that included a 2 hour flight delay, we made it home safely about 1:30 Saturday am.  After waking up, Jordan got to take her first shower since surgery, and it made her feel so much better!!  The face swelling was pretty bad on Friday and Saturday, but today it is looking much better and her leg discomfort is much better!  Today she says she has some numbness on the right side of her face and above her lip so I am going to email tomorrow to make sure that is normal. Overall, we are very pleased with the procedure. Now she just waits for the nerve to regenerate itself which happens about a mm a day.  The goal is in about 3-4 months she will feel some tingling. Below are some pictures of her facial incisions & fun in Boston.

Christmas is almost here!! As most of you know, Christmas is also the girls birthday and this year they will be 21!! So Christmas is always a very special time for us.
                                            Right side of face           Left side of face
                                            Jordan & Taylor & Jordan with the Christmas Tree in Faneuil Hall.

We want to wish all of you a very Merry Christmas and a wonderful New Year!!



Thursday, December 19, 2013

Boston...1st day post op

After a rough night of nausea, vomiting, and changing ice packs every hour she is doing well. We busted out of the hospital this afternoon, got to the hotel and took a good long nap! Her biggest complaint continues to be the swelling and the left leg discomfort. As all of you know that is her good leg so walking is a little rough.  She is on some antibiotics for the next 7 days and she has some good pain meds for the ride home. Jordan's positive attitude and perserverance continues to amaze me!
I want to also give a shout out to the wonderful staff of Mass Eye and Ear. They were wonderful!!!

Wednesday, December 18, 2013

Boston surgery..

 Today Jordan had the 1st of 2 surgeries  on her face to help her facial palsy. During the surgery a nerve from her left leg was connected to a nerve from the RIGHT side of her face and then threaded into the left side of her face. 3 hours and 5 incisions later she is doing great! The largest incision is on the right side of her face, one on the left side of her face, one on the inside of the upper lip, and 2 on the lower part of her left leg.
The only real complaint she has is the face dressing and her lip swelling! Unfortunately, the dressing has to be worn for the next 3-4 days and the swelling will get worse before it gets better:(
On another note if you ever travel to Boston ALWAYS ask the cab driver if he knows where he is going!!!  This morning the cab we took wanted us to tell him how to get to where we were going!! For those of you who know me personally, well ya know how that went!
I want to thank all of you for your thoughts and prayers!

Tuesday, December 17, 2013

Back on the road, 4.0 for the semester, & in Boston!!

Look out everyone because Jordan is back to driving!! Yesterday her car was fitted with the attachment to put the gas pedal on the left side of the brake to make driving easier for her.  I can't even begin to explain  how happy she is to have her independence back! While I am excited for her, I hope my nerves survive!! Let's just say it is worse than when she was 16!!
Today also brought the news of Fall semester grades...4.0!  All I can say is how proud I am of her and all of her accomplishments!! She is AMAZING! 
We arrived in Boston this morning to see the eye MD and to prepare for surgery tomorrow. The eye MD was very informativeand very overwhelming!!  Basically Jordan has 2 options she can choose from another surgery  or nothing.  He explained in great detail the pros and cons of each option. Jordan said she was going to discuss all of this with Dr. Bradley before she makes a final decision.  
Once that decision gets made I will pass that onto all of you!! 
On another note, it is VERY cold & snowy here!!! This Mom is not made  for cold weather!!
I want to thank everyone that continues to help & pray for Jordan & our family during this journey.

Monday, November 18, 2013

One month from today....

This time next month Jordan will be have the first surgery of the Cross Facial Nerve graft surgery with Dr. Tessa Hadlock in Boston!  Jordan is very excited and is looking forward to the final result, even it that final result will be 12-15 months from now!  I am so thrilled for her to get this started but yet very nervous/anxious for her! This will be her 3rd surgery this year and I can't help but worry!  Everyone has had lots of questions and I am going to try and explain it the best that I can.

The surgery next month will require moving a sensory nerve from the back of her calf and moving it to the RIGHT(good) side of  her face. When this is done the nerve will then be spliced into the base of the facial nerve on the right side. Once that is done it will then be pulled over her lip to the LEFT side of her face. The picture below demonstrates this process. They will then close her up and let the nerve heal and regenerate until summer. Then the 2nd surgery will occur( more on that later).  This surgery will be about 4 hours and will require an overnight stay. The goal after this surgery is during the healing/regeneration period she will begin to have some feeling in the LEFT side of the face. So once again while she is on break from school, she will be recovery from another surgery.

As you can all imagine this is a very exciting time for Jordan & all of us! The blog will be updated daily while we are in Boston and following surgery!  Please keep Jordan & our family in your thoughts & prayers during the weeks ahead!

Thursday, October 31, 2013

Getting back to driving......

Just wanted to let everyone know that Jordan officially started driver's training this week! She will take at least 10 hours of training before she is cut loose!  She is so excited & nervous about being back on the road and she can't wait to have this part of her independence back!!  I hope my nerves handle this better than when she was 16!  

Wednesday, October 16, 2013

Angels among us.....

When this journey started in May 2012 we knew that we wouldn't be able to do it without the help of family, friends, acquaintances, and complete strangers.  There have been times during the last 17months that we could not have made it without that help.  Today I want to say thank you to EVERYONE that has helped us either by prayer, food, emotionally, and financially.  All of your help has allowed us to keep our focus on Jordan. As we begin down another path of this Journey I was reminded yesterday that people cross our paths for a reason. I want to thank that special person that crossed my path yesterday via a mutual friend  for a wonderful gift to our family!
 Boston is getting closer by the day and we can't wait to get there to start the next part of Jordan's Journey. Please continue to keep Jordan & our family in your prayers.  PRAY FOR JORDAN

Finally has the Prism!!!

With everything going on I totally forgot about posting an update about the eyes!  On the 7th Jordan saw Dr. Bradley and her new glasses were fitted with a prism! Unlike most prisms this is just fitted over her lens and in her words "this makes it MUCH MUCH better"! Below is a picture of her with her new specs and she also wanted me to post a picture of her scar(17months post op)  They took some adjusting to but she seems to be doing great with them!  She is also  looking forward to seeing Dr. Stephens in November to see what she recommends.  

                                                                      New Glasses :)
17months Post OP

Wednesday, October 9, 2013

BOSTON BOUND!!!!!!!!!!!!!!!!!!!!

WHOO HOOOO!!! Today we received the final approval from the insurance company so that means we are BOSTON BOUND come December!! Think I just might have to buy me a new hat for this trip :)    Jordan is on the schedule for December 18th to do the 1st step of the 2 step procedure! I will update more once we get closer to the date!!

Thursday, September 26, 2013

It's the little things....

Most of us take for granted the little things in life.  The below is a conversation that Jordan & I had on text messages today.  Jordan: You would be so proud of me today ME: Why?  Call me!!  Jordan: I put eye drops in this morning.  Myself :)   Jordan: YEAH!!  I am so PROUD of you!!
Of course this made me cry happy tears!  It has taken her 16 Months to be able to do this by herself & this little step was a HUGE one.  So the lesson here for all of us is to NOT take the little things for granted!!
Please continue to say prayers for Jordan..we are still waiting to hear from the insurance company about Boston!

Monday, September 16, 2013

Lots of updates....

Well Jordan had her drivers evaluation a couple of weeks ago and it went great!!!  They used this neat thing that places the gas pedal on the left side of the brake! She did great with it! Looks like  she will only need to that one vehicle modification for her to be able to drive! So now we will wait to hear from Voc Rehab to make sure the training/modification will be approved!
Today we are seeing Dr. Bradley! Unfortunately, Jordan's eyes still aren't giving her the results that we were hoping for. Looks like Jordan would need 3 pair of glasses, one for near,one for distance, and one for driving. In KY you can NOT drive with prisms in your glasses:( This is NOT the best scenario!!  Botox was discussed but before we do that we will see another MD to get her opinion. I think we need a secretary to keep up with all the MD's we see!! Any volunteers?!?
So today she will get a script for glasses(near) with a detachable prism.  This is very disappointing for Jordan and for me as a Mom I just want to sit down and cry! Seems like for every step Jordan takes she gets pushed back 20! My girl needs a break! 
On another note we have asked for approval for the 2 step surgery by Dr. Hadlock! Keep all your fingers and toes crossed that this will happen!

Saturday, August 24, 2013

1st week of school & MD update...

Jordan has the 1st of school under her belt and she is already very busy studying! The rad sciences program is very demanding & she is up for the challenge! 
Yesterday Jordan also had a scan & saw Dr. Fraser for a follow up visit.  As I had mentioned before Jordan has been having issues with her right leg shaking. This has came up and gotten worse since surgery last year. Jordan has what is called hypertrophic olivary degeneration that is causing the shaking in her leg. This should NOT get any worse and is something she will always have. He said there is medicine she could take but for now Jordan has decided to not take anything. Overall it was a good report & Jordan doesn't have to see him for ONE year! 

On another note for all of you that have found the blog by trying to find out information on Angiomas or another medical issue & have contacted us, Jordan says thanks for the emails!

Until the next update..PRAY FOR JORDAN!

Saturday, August 17, 2013

Whirlwind of a week...

Well this week was a bit crazy with everything Jordan had going on! So let's start the update with Monday! Monday we meet with Voc Rehab to get the ball rolling in rehab for drivers training. Jordan is very excited about this because as most of you know she hasn't driven since April 2012! She wants that independence back! We did find out she qualifies for $10K in vehicle modifications if need be and for the rehab to be paid for by Voc Rehab! Finally she qualifies for something:-) 
Tuesday was surgery follow up visit with Dr. Bradley. The results were not what we were hoping for and she is hopeful that there will be more improvement with time. The eye is straighter but isn't moving like we were hoping for after 2 surgery's. We will see her back in one month for her to give Jordan the eye glass prescription. 
Now Thursday was move back to Morehead day!!! It was a crazy day but lots of excitement for Jordan! Her roommates are great and seem more than willing to help her out & that makes me feel much better about leaving her there!  Monday she will start classes & her major is Radiology Sciences! She is very excited about it and can't wait to get started! 
This week we also submitted to insurance to obtain approval for the 2 step procedure in Boston by Dr. Hadlock. We are praying this will be approved so we can move forward with this next step of the Journey! 
Until next week please continue to PRAY FOR JORDAN!

Saturday, August 10, 2013

8/9 Eye Surgery Update.....

Yesterday was Jordan's second eye surgery. What we thought was going to be a short smooth day turned out to be a LONG day:(   The actual surgery to weaken the muscle took only about 1 hour. Dr. Bradley said the surgery went well but for the first time Jordan woke up from the anesthesia shaking.  I must say with more surgery's in the future this does make me worry more!  The second step of this surgery was Dr. Bradly manually adjusting the muscle and tying the sutures.  This is where the 4 hour wait came in! Jordan had to be nice and awake for this so she could answer questions and move her eyes as directed by Dr. Bradley. Yes, she was wide awake for this with only numbing drops in the eye!  Let's just say as usual, Jordan was the perfect patient, with that constant smile on her face & of course, "no I am OK, there is no pain"! Taylor and I actually got to watch this and I must say it was pretty interesting!
The goal here was to 1. Straighten the eye again 2. help with the double vision.  After about 15-20 min of adjustments the sutures were tied. The muscle was moved to the maximum that is allowed. The eye does look straighter but it wasn't the great result that Dr. Bradley or we were hoping for.  Now we hope that the the muscles that were moved in the first surgery realize that this muscle from the second surgery has been weakened so they will pull the eye straighter. Now, don't get me wrong there is still a dramatic improvement to her eye so we are happy even with this result & we are still thankful. So for the next 2 weeks her eye will be bloodshot and she has to have ointment in her eye 3xday for the next 7 days. So overall, today went well & Jordan did great.
 We will see Dr. Bradley on Tuesday for follow up to make sure the eye is doing well & Jordan is hoping to get the glasses prescription that day also.  
I also want to apologize for not getting the blog updated yesterday! Thank you for your continued thoughts & prayers for Jordan and our family!  PRAY FOR JORDAN!!

Friday, August 2, 2013

Boston & Dr. Hadlock appt

This trip to Boston had been amazing! We meet with Dr. Headlock this morning and we are a little overwhelmed by all of the information that was received in such a short time span!
There are two surgical options available to Jordan. The first one is a two step process. This first step involves moving a nerve from the "good" side if her face to the "bad" side and letting that nerve regenerate for 6-9 months.  The second step then moves a muscle from her thigh and possibly a tongue nerve. After the second step the goal would be for the face to be asymmetrical and she would have a beautiful smile again!
The second option is to do a one step procedure that moves the tongue nerve/thigh muscle but the final result is not as dramatic as the 2 step.  
The plan is to digest this information, wait for her plan to be mailed to us, and then to make a decision. 
Please continue to keep Jordan and our family in your thoughts & prayers! We are off to enjoy some of Boston before our flight home.

Sunday, July 28, 2013

Therapy is going great...

Jordan just finished her second week of therapy & she is loving the challenges that come with it!  She is seeing what she needs to focus on to make her body stronger & is faithfully doing her exercises! We also visited the director of the radiology program at MSU last week and he reassured her that she will be able to do the program & also commented on her wonderful grades:-) Yes, it was a very proud Mom moment! The  visit was also very reassuring to us both & for Jordan it was nice to hear someone else say, YES YOU CAN DO IT! So now she is super excited about starting school in 3 weeks! 
We also visited the Honors house, picked up books, & of course ate at Pasquale's! I must say I ❤ Morehead & MSU!
This week we travel to Boston!!! We are so excited and Friday can not get here soon enough!! Looking forward to the next path on this journey!
Thank you for your continued thoughts, prayers, & support! PRAY FOR JORDAN!